Case Study 2
A referral was made by the GP practice for support for Mr A as he had low energy due to Fibromyalgia, chronic pain, ME and was no longer able to cope with the pain medication. A home visit was arranged to complete a full assessment on the impact of his health on his daily life.
Mr A said that he was on sick leave from work due to his health conditions; he had a demanding job and felt that he was not able to return, but was worried about his finances. He said he was unable to carry out daily tasks and used to exercise but now found this difficult due to the pain and fatigue. His wife does the cleaning around the house and cooks all the meals. Mr A said his car is their lifeline as they would not be able to go out if he did not drive. Mr A added that he sometimes experienced weakness that then causes him to fall and found going up and down the stairs in his home difficult.
Mr A had applied for a Personal Independence Payment (PIP) in the past but was not successful and said that he needs it now as, if he was unable to return to work, he was worried about the loss of income and may not be able to afford his car.
With consent, Mr A was referred to MYTherapy (www.midyorks.nhs.uk/my-therapy-team) to assess if any aids and equipment would be beneficial.
What did the Live Well advisor do?
The Live Well advisor spoke to Mr A about:
The Expert Patients Programme (EPP) (www.southwestyorkshire.nhs.uk/services/expert-patients-programme/) general self-management course, which Mr A was booked onto.
During the visit, support from the Disability Information and Advice Line (DIAL) (www.dialwakefield.co.uk) was also discussed, when applying for a PIP. Mr A was shown the website and the leaflet was also posted out.
Mr A’s wife is his carer, and support from Carer’s Wakefield (www.carerswakefield.org.uk) was also discussed.
Mr A said he had always been busy as he had worked full time. This was the first time he had more time on his hands but often did not feel well enough to venture out. He liked to spend time in his garden and was also interested in which groups are in the area and did not realise that a local directory was available.
At the six week review, Mr A said an assessment had been completed by MYTherapy and he was provided with some equipment. Mr A said that he is now able to do more in the kitchen and has made some meals.
He also received the local directory and read the information about Carer’s Wakefield, but his wife feels that she does not need support from them at this time.
Mr A said that no additional support was needed from Live Well Wakefield, but understood that he could contact the service if support was needed. Mr A was contacted for a six month review, and he said that he had been diagnosed with hypermobility and is receiving support from a physiotherapist through video calls.
Mr A was initially turned down for a PIP, but with support from DIAL, completed a mandatory reconsideration and is now receiving a PIP. This meant that he was able to finish work and not worry as much about the drop of income. DIAL had also helped him apply for a Blue Badge which Mr A now has and said it gives him more confidence to go out knowing parking should be easier.
Mr A said that he has attended the EPP general self-management course and found the peer support extremely helpful. Information was given about a local support group, which currently provides support through Facebook. Mr A said he had been enjoying time in the garden during the pandemic but will reconsider groups when the pandemic restrictions have been lifted.
Mr A thanked the advisor for the support they had received especially the information about DIAL, helping them apply for PIP, as this has taken some of the pressure off and they can now concentrate on their health.
A local GP said:
“During these unprecedented times of COVID-19, we have identified many vulnerable patients who, due to their current health and personal circumstances, have found themselves isolated and unsure on where to get help and support. The service offered by Live Well Wakefield, has been a lifeline to many, meaning that people do not feel trapped in their own homes.”